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Wiegand-Grefe S, Liedtke A, Morgenstern L, Hoff A, Csengoe-Norris A, Johannsen J, Denecke J, Barkmann C, Grolle B, Daubmann A, Wegscheider K, Boettcher J.

Health-Related Quality of Life and mental health of families with children and adolescents affected by rare diseases and high disease burden: the perspective of affected children and their siblings.

BMC Pediatr. 2022 Oct 14;22(1):596.

doi: 10.1186/s12887-022-03663-x.

PMID: 36229869; PMCID: PMC9563162.


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