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きょうだい支援を広める会
プラダー・ウィリ症候群における疾病負担：系統的文献レビュー
Dempsey D, Hall M, Lanning B, Barron-Millar B, Huang M, Cowen N, Nagao M, Gandhi R, Bhatnagar A.
The burden of illness in Prader-Willi syndrome: a systematic literature review
Orphanet J Rare Dis. 2025 Jul 24;20(1):374. doi: 10.1186/s13023-025-03787-0.
40708003
アイルランド。
Wider family dynamics were also often impacted, with siblings reporting increased psychosocial stress and feelings of neglect.
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