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Living with a rare disease - experiences and needs in pediatric patients and their parents
Witt S, Schuett K, Wiegand-Grefe S, Boettcher J, Quitmann J.
Living with a rare disease - experiences and needs in pediatric patients and their parents
Orphanet J Rare Dis. 2023 Aug 11;18(1):242. doi: 10.1186/s13023-023-02837-9.
37568186
ドイツ
希少疾患の種類は多岐にわたる。
Congenital malformations, deformations, and chromosomal abnormalities (Q00-Q99)
Malignant neoplasms (C00-C97)
Metabolic diseases (E70-E90)
Neoplasms of uncertain or unknown behavior (D37-D48)
Other diseases of blood and blood-forming organs (D70-77)
Disorders of other endocrine glands (E30-E35)
Episodic and paroxysmal disorders (G40-G47)
Haemorrhagic and hematological disorders of fetus and newborn (P50-P61)
Diseases of Liver (K70-K77)
Extrapyramidal and movement disorders (G20-G26)
Disorders of psychological development (F80-89)
タグ
希少疾患
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