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きょうだい支援を広める会
Challenges in Japan's dual systems of support for pediatric and adult intractable diseases
Karako K, Song P.
論説：小児および成人の難治性疾患に対する日本の二重支援制度における課題
Intractable Rare Dis Res. 2025 Nov 30;14(4):236-239. doi: 10.5582/irdr.2025.01067.
41341916
オープンアクセス。
Additional issues include inconsistencies in diagnostic criteria, limited access to transitional care facilities — currently established in only 12 prefectures — and insufficient family-centered support, especially for siblings acting as young carers.
タグ
慢性疾患
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