Sibling Support Awareness Group
vision
Overview and purpose
The Society for Disseminating Sibling Support has been active since 2004 with the aim of disseminating support for siblings of children with chronic illnesses and disabilities. Since siblings' worries last a lifetime and are constantly changing, support includes adults. We also propose support methods other than programs that provide peer support.
Initially, a support program for siblings of children with disabilities and chronic illnesses, such as the "Shibu Shop" developed in the United States, and a support program (gathering) for siblings of adolescents and adults in Japan. It was only intended to spread to.
However, the problem that siblings have cannot be solved only by providing a place for peer support. Therefore, while referring to the activities of overseas organizations, we will also disseminate support other than program management.
At meetings, we usually exchange information on the mailing list, but our goal is to meet in person once a year to exchange information.
The annual gathering was closed for five years due to various reasons, but it resumed in April 2014. Due to the international event in March 2019, the 2018 gathering was closed.
2026年度の活動の予定
クローズドの
FBグループ
2019年の東京でのシブショップファシリテータートレーニングを受けた方を応援するためのグループ。
日本の登録シブショップが増えるように、トレーニング受講生が１歩前進することをサポートします。
オンライン
zoom交流会
2026年度は、年１回の予定です。
対象は、広める会のメーリングリストに参加している方、クローズドのFBグループに参加している方のみです。
Activities as of November 2021 and future plans
シニアきょうだい支援
障がい者の家族が親亡き後の障がい者の暮らしについて将来設計をすることを後押しするプログラムの翻訳作業。
超高齢化社会の中で様々な課題を抱えるシニア層に役立つ情報の発信。
Sibling Leadership Network（SLN）研究プロジェクト日本チームの調査研究の共有。
年１回のきょうだい支援実践報告会。
東京での開催と大阪での開催を交互に行います。コロナ禍によりしばらくはオンラインで行っていました。オンラインで行うなら，海外の方の実践もお聞きしようと2020年度は米国のシブショップ関係者の方にも発表をお願いしました。
新組織の一般社団法人日本きょうだい福祉協会の設立準備に関わった関係で、2022年度～2025年度はお休みしました。
シブショップファシリテーターzoom
米国きょうだい支援プロジェクトのエミリーさんや海外のシブショップファシリテーターの方と情報交換を行うzoom。
日本語通訳をお願いするため、開催頻度は多くありません。
現在のところ、登録シブショップになっている方、きょうだい支援プロジェクトのトレーニングを受けたことのある方限定です。
History of establishment and a brief chronology
September 2001 The Kyodai Support Association invited Donald Meyer and Anne Guthrie (then University of Kansas) of the U.S. Kyodai Support Project to hold a two-day training to support Kyodai.
2001 Established a mailing list mainly for those who participated in the above two-day training on both days. Recruit participants only by word of mouth for a while.
January 2003 US Sibling Support Project announces standards for Shibu Shop practice.
March 22, 2004 A request to create a place where not only siblings but also third-party people can participate in discussing issues encountered during the operation of the sibling support program (Shibu Shop). In response to this, people in various positions such as adult siblings, welfare / medical specialists (people involved in supporting children with developmental disabilities, nurses at pediatric hospitals, etc.), parents, etc. Established "Meeting to spread sibling support" as a place to exchange information about "sibling support" for people or children / persons with chronic diseases.
Held a face-to-face gathering once a year from 2004 to 2008.
2009-2013 Due to various circumstances, face to face gatherings have been suspended for 5 years.
2014 Resumed the annual face-to-face gathering "Sibling Support Practice Report Meeting".
July 1, 2017 Renewal of the site.
March 2019
A two-day training session was held by Donald Meyer, a sibling support project in the United States, co-sponsored by NPO Shibutane.
November 2, 2021
Renewed to the current site.