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The Golden Freeway: a preliminary evaluation of a pilot study advancing information technology as a social intervention for boys with Duchenne muscular dystrophy and their families

Soutter J, Hamilton N, Russell P, Russell C, Bushby K, Sloper P, Bartlett K.

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The Golden Freeway: a preliminary evaluation of a pilot study advancing information technology as a social intervention for boys with Duchenne muscular dystrophy and their families

Health Soc Care Community. 2004 Jan;12(1):25-33.

https://doi.org/10.1111/j.1365-2524.2004.00465.x

14675362

筋ジストロフィー

The greatest use of the computer was for schoolwork with siblings sharing in this.

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慢性疾患

52598425_2213806042012952_84802132572173

​Meeting to spread sibling support

The Society for Disseminating Sibling Support has been active since 2004 with the aim of disseminating support for siblings of people with chronic illnesses and disabilities. Since the challenges that siblings can have change with age and last a lifetime, the support targets include not only children but also adults.

© ©​ Meeting to spread sibling support

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