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Parental stress in mothers of boys with duchenne muscular dystrophy

Nereo NE, Fee RJ, Hinton VJ.

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Parental stress in mothers of boys with duchenne muscular dystrophy

J Pediatr Psychol. 2003 Oct-Nov;28(7):473-84. doi: 10.1093/jpepsy/jsg038.

12968039

米国

母親だけでなく、siblings of boys with DMD (46例)も調査対象。

タグ

慢性疾患, 遺伝性疾患

52598425_2213806042012952_84802132572173

​Meeting to spread sibling support

The Society for Disseminating Sibling Support has been active since 2004 with the aim of disseminating support for siblings of people with chronic illnesses and disabilities. Since the challenges that siblings can have change with age and last a lifetime, the support targets include not only children but also adults.

© ©​ Meeting to spread sibling support

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