top of page

Living with a rare disease - experiences and needs in pediatric patients and their parents

Witt S, Schuett K, Wiegand-Grefe S, Boettcher J, Quitmann J.

​

Living with a rare disease - experiences and needs in pediatric patients and their parents

Orphanet J Rare Dis. 2023 Aug 11;18(1):242. doi: 10.1186/s13023-023-02837-9.

https://doi.org/10.1186/s13023-023-02837-9

37568186

タグ

​

52598425_2213806042012952_84802132572173

​Meeting to spread sibling support

The Society for Disseminating Sibling Support has been active since 2004 with the aim of disseminating support for siblings of people with chronic illnesses and disabilities. Since the challenges that siblings can have change with age and last a lifetime, the support targets include not only children but also adults.

© ©​ Meeting to spread sibling support

bottom of page