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Living with a rare disease - experiences and needs in pediatric patients and their parents

Witt S, Schuett K, Wiegand-Grefe S, Boettcher J, Quitmann J.

Living with a rare disease - experiences and needs in pediatric patients and their parents

Orphanet J Rare Dis. 2023 Aug 11;18(1):242. doi: 10.1186/s13023-023-02837-9.

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