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パキスタン・カラチにおける知的障害児の家族のインフォーマルな社会的支援:質的探索的研究デザイン

Lakhani A, Ali TS, Kramer-Roy D, Ashraf D.

Informal social support for families with children with an intellectual disability in Karachi, Pakistan: A qualitative exploratory study design

Heliyon. 2024 Oct 10;10(20):e39221. doi: 10.1016/j.heliyon.2024.e39221. eCollection 2024 Oct 30.

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パキスタンの知的障害児の家族、5家族を対象に、インフォーマルな社会的支援の経験と課題を質的に探索。親は自己犠牲や家族内の支援不足、社会的スティグマに苦しむ一方、宗教や友人、同じ境遇の家族とのつながりが慰めとなった。政府による支援や看護師・支援グループの必要性が示唆された。

著者抄録に同胞に関する結果の記載はないが、同胞5名も調査対象になっている。

Five families were recruited for the data collection, comprising 25 participants. 

This group included 8 mothers, 6 fathers, 3 grandparents, 5 siblings, and 3 maternal and paternal aunts.

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​Meeting to spread sibling support

The Society for Disseminating Sibling Support has been active since 2004 with the aim of disseminating support for siblings of people with chronic illnesses and disabilities. Since the challenges that siblings can have change with age and last a lifetime, the support targets include not only children but also adults.

© ©Meeting to spread sibling support

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