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Experiences of Family Caregivers of Children Aged 1-23 Months Who Have Received Pediatric Palliative Care: A Systematic Review With Qualitative Metasynthesis

Sanchez JMV, Sanchez MR, Mota Romero E, Burgos AAE, Montoya Juarez R, Montoro CH, Puente Fernandez D.

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J Nurs Scholarsh. 2025 Apr 1. doi: 10.1111/jnu.70008. Online ahead of print.

40169364

Caregivers strive to remain united and rebuild the daily family life they long for, but face challenges related to self-care, maintaining employment, and caring for siblings and their partner.


スペイン

小児緩和ケア

タグ

慢性疾患, 障がい

52598425_2213806042012952_84802132572173

​Meeting to spread sibling support

The Society for Disseminating Sibling Support has been active since 2004 with the aim of disseminating support for siblings of people with chronic illnesses and disabilities. Since the challenges that siblings can have change with age and last a lifetime, the support targets include not only children but also adults.

© ©​ Meeting to spread sibling support

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