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Experiences and Support Needs of Siblings of Individuals With Prader-Willi Syndrome- Findings From a Two-Stage Qualitative Study

Kamble MW, Dawe J, Bunning K.

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J Appl Res Intellect Disabil. 2025 Sep;38(5):e70122. doi: 10.1111/jar.70122.

https://doi.org/10.1111/jar.70122

40985314

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This two-stage qualitative study involved siblings aged 11 years onwards (n = 11) and parents (n = 8).

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52598425_2213806042012952_84802132572173

​Meeting to spread sibling support

The Society for Disseminating Sibling Support has been active since 2004 with the aim of disseminating support for siblings of people with chronic illnesses and disabilities. Since the challenges that siblings can have change with age and last a lifetime, the support targets include not only children but also adults.

© ©​ Meeting to spread sibling support

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