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Challenges in Japan's dual systems of support for pediatric and adult intractable diseases

Karako K, Song P.

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論説：小児および成人の難治性疾患に対する日本の二重支援制度における課題

Intractable Rare Dis Res. 2025 Nov 30;14(4):236-239. doi: 10.5582/irdr.2025.01067.

https://doi.org/10.5582/irdr.2025.01067

41341916

オープンアクセス。

Additional issues include inconsistencies in diagnostic criteria, limited access to transitional care facilities — currently established in only 12 prefectures — and insufficient family-centered support, especially for siblings acting as young carers.

タグ

慢性疾患

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​Meeting to spread sibling support

The Society for Disseminating Sibling Support has been active since 2004 with the aim of disseminating support for siblings of people with chronic illnesses and disabilities. Since the challenges that siblings can have change with age and last a lifetime, the support targets include not only children but also adults.

© ©​ Meeting to spread sibling support

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