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致死的な疾患、生命を脅かされる疾患の小児や若年者における霊的、宗教的、実存的な懸念:質的インタビュー研究

Scott HM, Coombes L, Braybrook D, Roach A, Harðardóttir D, Bristowe K, Ellis-Smith C, Downing J, Murtagh FE, Farsides B, Fraser LK, Bluebond-Langner M, Harding R.

Spiritual, religious, and existential concerns of children and young people with life-limiting and life-threatening conditions: A qualitative interview study.

Palliat Med. 2023 Jun;37(6):856-865.

Epub 2023 Mar 28. PMID: 36978266; PMCID: PMC10227090.

調査対象の中に5歳から17歳の同胞も含まれる。 One hundred six participants were interviewed: 26 children (5-17 years), 53 family members (parents/carers of children 0-17 years and siblings (5-17 years)), 27 professionals (health and social care professionals and commissioners of paediatric palliative care).
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慢性疾患

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​Meeting to spread sibling support

The Society for Disseminating Sibling Support has been active since 2004 with the aim of disseminating support for siblings of people with chronic illnesses and disabilities. Since the challenges that siblings can have change with age and last a lifetime, the support targets include not only children but also adults.

© ©Meeting to spread sibling support

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