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まれな遺伝性疾患における介護者の負担：文献レビューと概念モデル

Sandilands K, Williams A, Rylands AJ.

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Carer burden in rare inherited diseases: a literature review and conceptual model.

Orphanet J Rare Dis. 2022 Dec 9;17(1):428.

https://doi.org/10.1186/s13023-022-02561-w

PMID: 36494728; PMCID: PMC9733280.

タグ

遺伝性疾患

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