top of page

まれな遺伝性疾患における介護者の負担：文献レビューと概念モデル

Sandilands K, Williams A, Rylands AJ.

​

Carer burden in rare inherited diseases: a literature review and conceptual model.

Orphanet J Rare Dis. 2022 Dec 9;17(1):428.

https://doi.org/10.1186/s13023-022-02561-w

PMID: 36494728; PMCID: PMC9733280.

タグ

遺伝性疾患

52598425_2213806042012952_84802132572173

​Meeting to spread sibling support

The Society for Disseminating Sibling Support has been active since 2004 with the aim of disseminating support for siblings of people with chronic illnesses and disabilities. Since the challenges that siblings can have change with age and last a lifetime, the support targets include not only children but also adults.

© ©​ Meeting to spread sibling support

bottom of page