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"As time passes, her disability becomes severe." The struggles and challenges of caring for children living with spina bifida and hydrocephalus in Uganda: perspectives from caregivers

Ssemata AS, Ndekezi D, Ganshanga A, Nalugya R.

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Disabil Rehabil. 2025 Dec;47(26):6935-6949. doi: 10.1080/09638288.2025.2527947. Epub 2025 Jul 12.

https://doi.org/10.1080/09638288.2025.2527947

40650529

二分脊椎、水頭症

ウガンダ

タグ

障がい

52598425_2213806042012952_84802132572173

​Meeting to spread sibling support

The Society for Disseminating Sibling Support has been active since 2004 with the aim of disseminating support for siblings of people with chronic illnesses and disabilities. Since the challenges that siblings can have change with age and last a lifetime, the support targets include not only children but also adults.

© ©​ Meeting to spread sibling support

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